This Referendum has me swayed. I have read and watched many stories of why we should vote Yes and No. Very convincing on both sides, we should move with the times I thought and am still swayed that way. I lived in Galway when Salvita Halappanaver died and under no circumstances should that have happened, I would not want this for my future wife or children, my nieces or nephews.
I also seen that CF was used as a tool in this referendum and that angered me a lot. Years ago CF was known as a disease with Fuck all survival rate and if known then a mother might choose to abort. I know my family and know that it would never be an option. The issue being that CF is only one chronic illness. Giving the woman a right to abort because their child could possibly have a altered way in life is wrong. Below is a report done in 1991.
The majority supported legal abortion in the first trimester for all 23 situations; 58% would abort for severe mental retardation (MR), 40% would abort for a genetic disorder leading to death before age five years, 41% for a child bedridden for life, 35% for moderate MR, 20% for CF and 17% for a severe incurable disorder starting at age 40 years. Few would abort for a disorder starting at age 60 years, for genetic susceptibility to alcoholism or for sex selection. Variables most strongly related to abortion for CF were attitudes of spouse, respondent's siblings, and CF doctor toward abortion for CF as well as infrequent attendance at religious services.
I would like to see these statistics now, promising that CF got a majority vote when survival was 13-16.
I honestly think it comes down to faith in humanity and common sense.and it really makes me laugh that politicians have a say in how we live. If it does pass it'll be interesting to see if they can put it in place properly.
I will not waste my vote but I will be thinking of PWCF and my future wife and kids too. Times are a changing #repealingthe8th #notaseasyasitlooks
I was released from the Mater hospital on the 9th of June, 2014 at 50kg. My target is to hit 70kg (which would be a massive achievement for me). My biggest concern was my lung function which dropped by 6%. Recently I have started a 6 week programme with Paula O Neill in Ballinrobe to build up muscle and bring this back to what it was. Weight gain was a huge issue all my life. In CF you constantly receive infections which make your body weak and you have no appetite. In the end I got a peg tube. For those that don’t know a peg tube is a tube that goes straight into your stomach and special high calorie food is pumped directly in. This tube, which I never wanted, practically saved my life, and got me to a weight that enabled me to receive a transplant. It was removed after transplant. It’s safe to say that CF patients and dieticians never see eye to eye.