This blog is to stop people asking the same questions as well as awareness.
Five months previous I fell and hit the back of my head. On the Saturday 3rd of May in St. Vincents I gradually got worse and a bleed began to form. Which also led to a huge swelling in my brain. With Martina and Rosie listening to a doctor to move my toe. Soft talking lead to roars which led to the girls becoming more anxious and worried. Only minutes away from a major brain operation to release pressure and potential disaster the lovely curley haired doctor said and I quote. “Billy if you don’t move your toe or arm you will be going to Beaumont for a major operation with huge risks” with that I moved my arm. Ironically this is what my donor had died from a brain operation. Why did I respond. I will never know. On this occasion that is where the fight began some might say it began when I was born and they are not wrong as you are born a fighter or just to be present. Our lives are destined and I believe that I am here for the greater good. If you give me a challenge I will try my hardest to achieve it but sometimes we fail. And without failure success is impossible but in the word Impossible is the word possible.
So after 2 weeks bedbound I stood up with Mark Finlay and Rosie by my side and took my first steps. Never did I think I would not overcome this. I was approached by consultant after consultant and therapist who told me you might never regain my complete brain power or my power on left side. They told me in the mater that the fall led to a bleed which in turn gave me a episodic once off seizure, this meant I have another lifelong tablet Keppra. The tablet is operated by the Kidneys which means there are no more binges of drinking. A quiet drink here and there I found out today is fine. But once you go above your threshold the kidney shuts down and keppra does not work. Hence you are prone to another seizure. They also cause mood swings. After 5 weeks I was discharged on the 9th of June with trepidation on Prof. Egans eyes. Since that day I piled on 18kg. Over 2 stone with one more to go. Got my left side back to functionality and have created a website with almost 20,000 unique viewers all over the world. This is phenomenal according to my neurologist consultant. And the people here have told me I should have never been admitted. That brain picture is now my drive to achieve what ever I want. I will be returning to driving and work in November while also trying to promote all this awareness. Olive said, there is a reason you have overcome these hurdles and I still don’t know why but let’s continue this journey and see where I will end up. I will be 6ft under at some stage in my life but I will continue to defy odds and pay back the gratitude that has been shown to me by countless friends who some i would count as family, to Danny, Pat D, Paula O Neill and of course that off the wall family of mine. When times are tough I have people to turn to and that’s why I love them. #abiireland #livelife


CF Sufferer & Transplant recipient




There are 2 comments
This is a great and compelling blog, thank you Billy
Billy you are an inspiration. I read all your blogs and I know you have a great family behind you. Delighted to hear you are going back to work soon best wishes Heather